Advice For Nurses Working With Severe ME Patients

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Some advice for nurses.
Also useful for carers, friends and visitors to help them understand.

Documenting M.E.

The experience of having regular visits from hospice nurses has been a wonderful one, for the most part. The nurses who visit me are skilled, compassionate, intelligent, kind, caring, and just plain good at what they do. Considering I am their first ME patient ever, things have gone extremely well. Several individuals at hospice have taken hours of their own personal time to educate themselves on true ME and how to meet my needs in the best possible manner. Still, it has been a learning process, for all of us. Even I wasn’t entirely sure what to tell them at the start – after all, I’d never had this level of care before. It would take us some time to figure out what works best for me. That said, we pretty much have it down now, so I thought I’d share some of what we’ve learned. Hopefully reading this will…

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It has been a long while since I blogged and I apologise to followers who must have surely given up on me by now.

In October last year my partner was diagnosed with kidney cancer.  We were hopeful he would live longer but in the very early hours of 10 July he lost the fight and passed away.  Sooner than anyone expected.

Bob was a good man, an honest man, and my true gentleman.

my heart is still shattered.  will be for a long time yet.  maybe forever.

one day at a time.  some days I’m okay.  other days. and nights. it all crashes down again and the tears flow and flow.

and have no idea about Where To From Here.

Time will tell I guess.

In the meantime please be patient with me…I will get back to blogging seriously sooner…

                                       …or later.

UN housing investigator’s report exposes Shapps’ lies

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Well worth the read.

How to upset Conservative bullyboys

Vox Political

Oh, so she wasn’t invited by the government and she didn’t visit government offices, did she?

And did she really not use the proper terms for government policies like the bedroom tax?

The press statement by Raquel Rolnik, UN special rapporteur on adequate housing, on her mission to examine the effects of the bedroom tax on the people of the UK suggests otherwise. In no uncertain terms.

Once again, Grant Shapps is exposed as a liar.

He is the chairman of the Conservative Party, the organisation that tells us it is running the country, and you can’t believe a word he says.

But we’ll let the report speak for itself, shall we?

London, 11 September 2013

Introduction

From 29 August to 11 September 2013, I undertook an official visit to the United Kingdom of Great Britain and Northern Ireland at the invitation of the Government. My visit included…

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SABBATH PEACE

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View from window
SABBATH PEACE

Mother lights the Sabbath candles
and all the children stand around her
they cast a glance to the candlesticks
full of light and warmth and love

Mother gives a blessing ‘Shabbat Shalom’
and mother prays ‘Shabbat Shalom’
Mother wishes ‘Shabbat Shalom’
to all her family

Mother lights the Sabbath candles
she closes and covers her eyes
and all the children slowly, slowly
whisper a prayer in their hearts

Mother lights the Sabbath candles
and the sun is already turned towards the sea
dusk will fall from above
but light will remain in our homes forever.