Pyrexic Disease (or, Why The Creation of SEID Should Concern Us All)

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Documenting M.E.

Since the recent release of the Institue of Medicine’s report recommending the creation of a disease called Systemic Exertion Intolerance Disease, there has been a lot of confusion over what exactly the report says, and whether it is a good thing for patients. Some are claiming the report itself is about something called “ME/CFS” and not ME, and therefore doesn’t apply to ME at all (if you’re confused about the distinct differences between ME and CFS, please read this post). These people tend to see the report as a good thing. Others see the report as further muddying the waters and creating yet another diagnosis where people with varying diagnoses will be thrown together inappropriately. Even the committee members themselves, who claim to have unanimously approved the report’s contents, give varying answers on whether the report concerns ME patients or not. And while some (not all) of these committee…

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About M.E. In The 21st Century

At time of writing, I live in Oz, am a 61 y o grandmother, have had M.E. for about 33 years along with Fibromyalgia and Bilateral Tenosynovitis, among other health problems. The blog isn't really about me. Sure some of it will be, but mostly it's about M.E. and how it affects people who have it, and the ways M.E. patients are treated (or not treated) by the medical profession, allied health industry, disability groups, and their families & friends. There will be other subjects commented upon too. I really cannot, refuse to, concentrate on just one area of interest to the exclusion of everything else. I intend to update this info later.

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